But the other day I met with someone who had it too, and we had some time to spend together so we got a little bit more into it. She has had it for 10 years, so I felt like I was up against a pro. We talked about the obligatory, how long have you had it, what were your symptoms, etc.. But since I had a few hours to sit there, we got a little more into it.
We were talking about what foods we missed, and I said something like it was still possible to make most of those foods with GF flours, and she shocked me by saying that she just gives in and will eat some of her missed items once a week. I was in shock. I was thinking, maybe she is not diagnosed celiac, but she was, 100% celiac with a family history of colon cancer. She went on to tell me how once she got gluten out of her system, she was "able" to reintroduce a little bit at a time. "That is all about reintroduction," she said she will have regular pasta once a week and still buys "whole grain" bread, because at least it is better for her than cheap white bread. I was completely flabbergasted. And it made me feel like a gluten nazi, when I said how I won't even touch the stuff. I asked her if she worried about gluten in shampoos, lotions and soaps and she said that she didn't because she buys organic...what???!!! Organic does ≠ GF, if anything there is probably more gluten in some of those products, because that is what is making it "natural". I was at a loss for words.
Now, some people who know me will think that every time someone tells me they have a symptom I will immediately diagnose them with celiac, that I just think everyone has it these days - ha! And while I know the facts and just how common it is, I am also not going to preach to someone about it. It was interesting, because she was pregnant, and she also told me how she gets really bad eczema...I wanted to be like, "duh, you don't say??!!" But, I kept my mouth shut for the most part.
The only thing I did say was, "you know it still does damage to your body when you don't feel the effects". She answered that she knew, but she just doesn't want to get "all crazy" about it, she doesn't read all labels or use vitamins. But then she went on to say, she has even had to go to the ER because of had bad she has felt when she has had it, but it still doesn't deter her from continuing to eat it.
I was just so in shock with the different outlooks we have. Me, who avoids it like poison down to what shampoo and lotion I use, to this woman who still buys whole grain bread because she feels it is better. I definitely don't want to be in pain or cut my life short because of some easy changes that could be made. I would hate to look back and see how I could have easily changed things. This was honestly my first time meeting another celiac with this laid-back attitude.
In the end, I guess it is not my place to say anything. But wow, it just blew me away!